Friday, December 09, 2011

Dainty as an elephant...

This has been a crazy summer and fall. This summer we finally got Maeve into occupational therapy and speech therapy, as well as behavioral therapy and some physical therapy (though that is on hold right now as her physical therapist had a stroke and retired but someone new is starting at the beginning of January).

With Maeve's extreme anxiety we decided it would be best to have Tripp there with her initially... her therapist recommended that we have him evaluated as well. Turns out he definitely needed speech and also needed occupational therapy as well. Then I started noticing how hyper and out of control he could get, so we had him evaluated at Maeve's psychologist's office. Long story short he more than likely has ADD/ADHD but because of his major delays in speech and a few other things they are not giving an official diagnosis yet as those things can also indicate Pervasive Developmental Disorder, or Asperger's. The psychologist is holding off on the diagnosis until he's completed his year of speech therapy but in the mean time he will be starting ABA therapy.

I started to notice a few similar things with Rudy's behavior so I had him evaluated for OT and ST as well. And even though he is not as delayed as Maeve and Tripp are, because he is the baby and the people he plays with and emulates the most are Maeve and Tripp, we've gone ahead and put him in therapy as well.

Then I noticed Bella exhibiting some sensory issues and a tongue thrust (a speech thing) so I went ahead to have her evaluated... basically I now have 4 children who attend occupational therapy and speech therapy each week.

One of their main issues is sensory processing disorder which basically is a neurological condition that makes them process sensory input in a different manner. Some times they are over sensitive to sounds, sights, or textures... even emotions (in Twilight world Jasper would probably have SPD), other times they need more stimulation than the average person and seek out certain sounds, textures, or sights. Another major factor is coordination. There can be problems with sending signals through the brain that can cause clumsiness. This is important... especially when you consider it is genetic.

Anyway I feel like we have a new lease on life through therapy. The kids are all doing amazingly well and best of all, answers for me are popping up out of nowhere. Normally people with SPD are introverts, but about a third of the time they can be an extrovert... like me. After speaking with the OT I started to realize I do many of the same things and they affect my life as much as they do the kids. For instance I have to wear ear plugs if the dishwasher, washing machine, and music are all going at the same time. It makes me anxious and feel like my heart is going to pound out of my chest.

You may have also noticed how clumsy I am. Turns out thy kids have inherited this from me. The best news is even I can get a handle on much of this. It's been recommended that we get a trampoline and the kids and I jump on it everyday to help with becoming more aware of where our bodies are in relation to other objects in our environments.

When speaking to Danny I could see the light bulb going off and him connecting all of the little dots. It even explains my hypersensitivity to pain. He agreed with the occupational therapist and now things like me freaking out when all four kids are talking to me at once makes a lot more sense to him. It doesn't make it right, but at least we now understand and I am able to preempt it.


So this is taking a long time to explain, and I'm very tired, but anyone who has known me  a long time can do a little search about sensory processing disorder or sensory integration dysfunction and learn more about it. I'm hopeful that one day we can all live a bit more normal, happier, lives, with less stress.

1 comments:

  1. It must feel good to get some answers and direction on how to help/relieve some of the anxiety related to the new found diagnosis for all of you! Fascinating how things can all come together and make sense. To know there are reasons people behave the way they do, having a name for those reasons is nice, too. I am happy the help is available to make things a little easier. Love you.

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